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Rare diseases News

20 Mar 2018

Irrfan Khan shares picture, a meaningful poem on Instagram

The actor shared a picture and a meaningful poem on his Instagram account.

16 Mar 2018

Neuroendocrine Tumour: All you need to know about Irrfan Khan's rare disease

Learning that I have been diagnosed with Neuroendocrine Tumour as of now has admittedly been difficult, but the love and strength of those around me and that I found within me has brought me to a place of hope: Irrfan Khan

Rare conditions

23 Oct 2017

11-year-old Nepalese girl suffering from rare condition can 'smell' colours

Online footage shows the girl blindfolded, sniffing different colours and identifying them correctly. She was even able to decipher the colours on a newspaper page.

28 Jun 2017

Ahead of GST rollout, NPPA releases ceiling price of 761 medicines - Drugs for diabetes, cancer to get cheaper

In order to facilitate smooth implementation of GST for companies, we have worked out the provisional ceiling prices of 761 formulations, NPPA Chairman Bhupendra Singh said.

26 May 2017

Implement National Policy on rare diseases: HC to Centre

The report was tabled before Justice Manmohan who was hearing pleas by several individuals suffering from rare diseases and were insured with the Employee's State Insurance Corporation (ESIC) which, as per them, was not willing to foot the cost of treatment.

26 May 2017

Implement National Policy on rare diseases: HC to Centre

The Delhi High Court today directed the Centre to implement without delay its National Policy for Treatment of Rare Diseases, which was formulated on the court's direction last year.

Susac's syndrome

01 May 2017

Scientists uncover Spanish painter Francisco Goya's undiagnosed illness after 200 years!

Goya's undiagnosed illness led to experts speculating that he had bacterial meningitis or syphilis, or had developed lead poisoning from working with paint.

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